Edwards' syndrome (T18): information for parents
This information is for parents whose baby may have Edwards' syndrome. It can help them talk through the next stages of their care with health professionals.
Applies to England
Documents
Details
Edwards’ syndrome is a condition screened for at the 20-week scan as part of the NHS Fetal Anomaly Screening Programme (FASP). This document includes information for parents about:
- what the condition is
- follow-up tests and appointments
- what the outlook for the baby is
- what happens next
- how likely it is to happen in future pregnancies
- where more support and information is available
Refer to how to print digital leaflets if you need to provide a copy of this guidance to people who cannot access the internet.
Updates to this page
Last updated
-
Changed lead organisation to NHS England. Removed reference to screening helpdesk. Removed references to PHE. Added statements on data usage and opt-out.
Update history
2025-04-25 14:55
Added translations for Arabic, Bengali, Chinese, Gujarati, Polish, Portuguese, Punjabi, Romanian, Spanish and Urdu
2025-02-03 15:25
Changed lead organisation to NHS England. Removed reference to screening helpdesk. Removed references to PHE. Added statements on data usage and opt-out.