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Change description : 2025-05-07 08:38:00: Opening of consultation into screening for Metachromatic leukodystrophy. [News and communications]

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News story

UK NSC consultations

The UK NSC is currently consulting on whethernewborn toscreening offerfor ametachromatic humanleukodystrophy papillomavirus (HPV) self-sampling option to under-screened people in the cervical screening programme.(MLD).

Consultation now open

The UK NSC is consulting on the following recommendation:

Self-sampling for human papillomavirus (HPV) testing should be offered to under-screened people eligible for the NHS Cervical Screening Programme in the 4 UK countries, where service commissioners think self-sampling would be a helpful addition to the programme.

Any individual or organisation can respond to the consultation. To participate, please visit the cervical screening recommendation page for more information and to download the consultation documents.

Please note the instructions on the recommendation page regarding how to submit your comments.

The consultation will close on 26 February 2025 at 11.59pm.

Types of UK NSC consultation

The UK National Screening Committee (UK(UK NSC)NSC) runs the following types of public consultations.

Condition recommendation consultations

These relate to whether to screen for a certain condition. They are the most common type of consultation. The UK NSC reviews conditions every 3 years to determine whether it can recommend a screening programme. You can find these conditions in the UK NSC’sNSC’s recommendations list.

There are slightly different review processes depending on whether the condition is currently recommended or not currently recommended for screening.

Programme change consultations

For conditions where there is already a population screening programme, the UK NSC carries out programme change reviews. They relate to how to screen, rather than whether to screen. They are to make recommendations on changing an existing programme, for instance to introduce a new type of screening test.

Open consultations

ThereThe UK NSC is ancurrently openconsulting on newborn screening for metachromatic leukodystrophy (MLD).

The consultation relatingdocuments can be downloaded by clicking on ‘View documents’ on the UK NSC metachromatic leukodystrophy screening recommendation page.

To respond to cervicalthe screening.consultation, Seeeither detailscomplete above.the consultation response form and send it to uknsc@dhsc.gov.uk, or email your comments/feedback directly to uknsc@dhsc.gov.uk. Do not click on the ‘Submit comments’ link on the recommendations page because the online comments form is currently not operational and your comments will not be received via this route.

The consultation closes at 11.59pm on Tuesday 5 August 2025.

Closed programme change consultations

Find details of all previous (closed) UK NSC programme change consultations.

Subscribe to UK NSC updates to receive alerts when the UK NSC opens screening consultations into conditions you are interested in.

Updates to this page

Published 14 May 2021
Last updated 47 DecemberMay 2024 + show2025 href="#full-history">+ show all updates

Update history

2025-08-07 08:51
Details added on consultation for SCID screening

2025-08-06 08:43
Information removed on MLD consultation which closed at 11.59pm on 5 August 2025.

2025-07-17 15:32
Consultation on screening for dementia added.

2025-05-07 08:38
Opening of consultation into screening for Metachromatic leukodystrophy.

2024-12-04 10:31
Opening of consultation into a recommendation to offer HPV self-sampling option to under-screened people in the cervical screening programme.

2024-10-03 15:25
Consultation open into dental disease screening in children aged 6 to 9 years.

2024-03-06 17:00
Closing of consultation into Edwards’ syndrome screening pathway modification.

2024-03-01 15:31
Addition of consultation into addition of quad test to Edwards’ syndrome screening pathway.

2023-08-07 10:51
Consultation opens on allowing use of digital pathology in cancer screening programmes.

2023-06-04 09:30
Vasa praevia consultation has ended

2023-03-03 08:32
Opening of consultation into screening for vasa praevia.

2022-10-31 09:08
End of pre-eclampsia consultation

2022-10-07 08:37
End of HTLV consultation

2022-08-09 09:23
End of iron deficiency anaemia consultation

2022-08-08 11:37
opening of consultation on pre-eclampsia

2022-07-06 11:39
Consultation opened for human T-lymphotropic virus (HTLV) type 1

2022-07-05 10:57
End of autism consultation

2022-06-09 09:29
Consultation on lung cancer screening has closed.

2022-05-11 08:09
Consultation closed on screening for primary hypertension in children and young people

2022-05-05 08:59
Opening consultation on screening for iron deficiency anaemia in children.

2022-04-11 10:49
Consultation opened on screening for autism.

2022-03-14 14:15
End of consultation on tyrosinaemia.

2022-03-11 16:56
Added details that the population screening programme consultation for lung cancer is now open.

2022-02-21 11:36
Opening of public consultation on screening for primary hypertension in children and young people.

2022-01-19 12:38

2022-01-14 13:12
End of thyroid disease consultation period

2021-12-14 16:58
UK NSC consultation on tyrosinaemia now open.

2021-10-28 13:38
Consultation opened into screening for cytomegalovirus (CMV).

2021-10-18 15:59
Updated list of current UK NSC consultations to include consultation on thyroid disease.

2021-10-12 11:20
Updated the list of current UK NSC consultations.