HTLV National Register: patient information
The human T-cell lymphotropic virus (HTLV) National Register for blood donor screening and how to take part in research that helps improve understanding of HTLV.
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The patient information guide gives prospective participants an overview of how the HTLV National Register works. It explains what information the register collects from blood donors, how that information is stored and how it is used while maintaining strict confidentiality. It also outlines the steps a participant can take if they choose to leave the register in the future.