This publication explains the neural tube defect anencephaly, a condition screened for by an ultrasound scan as part of the NHS Fetal Anomaly Screening Programme.

The document includes information for parents whose baby has screened positively for anencephaly about:

• what the condition is
• how common it is
• how it is diagnosed and confirmed
• what treatment is available
• what the outlook for the baby is
• what happens next
• how likely it is to happen in future pregnancy
• where more support and information is available