Guidance
Spinal muscular atrophy (SMA): information for parents
Information and advice for parents of babies with suspected spinal muscular atrophy (SMA) following newborn blood spot screening.
Applies to England
Documents
Details
This information is for parents if your baby is suspected of having spinal muscular atrophy (SMA) following their newborn blood spot screening test (the heel prick test). It will help you and your healthcare professionals talk through the next stages of your baby’s care.
Updates to this page
Published 30 September 2026