Hepatitis C nationalNational registerRegister

The register is based at UK Health Security Agency (UKHSA) in London.

A multidisciplinary team, under the guidance of an expert steering group, undertakes the work of the register.

The register contains data for one of the largest cohorts of patients in Europe who have acquired their hepatitis C infections on a known date. Most cases are transfusion recipients who were traced during the national HCV lookback programme.

Systematic collection of clinical data using standardised report forms allows us to gather data consistently about every 3 to 5 years. This data, along with linked mortality and cancer data for cases and controls, allow us to establish the clinical course of hepatitis C virus (HCV) infection, and investigate risk factors for progressive disease.

Ongoing recruitment of paediatric and other HCV infections with known dates of acquisition enables us to inform and compare the clinical course of HCV infection in other important patient groups.

See nationalNational registerRegister of HCV: published papers on the UK Government Web Archive.

See HCV nationalNational register:Register: clinicians bulletin on the UK Government Web Archive.

See UKHSA privacy notice.

Contact information

Email the hepatitis team at: hepatitis@ukhsa.gov.uk

If you have any enquiries relating to the Infected Blood Compensation Scheme, please see who can join the scheme and how to apply.

The Infected Blood Compensation Authority (IBCA) is looking for input into how its service is designed and delivered. If you would like to provide input, please register your interest to help shape the IBCA service.