Hepatitis C National Register
The register helps inform the natural history of hepatitis C virus (HCV) infection in the UK with patient data.
- From:
- UK Health Security Agency
- Published
- 2 April 2013
- Last updated
-
13
6JuneJanuary20262025— See all updates
Documents
HCV National Register: registration form
PDF, 500 KB, 2 pages
This file may not be suitable for users of assistive technology.
Request an accessible format.
If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email publications@ukhsa.gov.uk. Please tell us what format you need. It will help us if you say what assistive technology you use.
HCV National Register: follow-up form
PDF, 450 KB, 2 pages
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If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email publications@ukhsa.gov.uk. Please tell us what format you need. It will help us if you say what assistive technology you use.
HCV National Register: patient information sheet
PDF, 53.6 KB, 2 pages
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If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email publications@ukhsa.gov.uk. Please tell us what format you need. It will help us if you say what assistive technology you use.
HCV National Register: parent information sheet
PDF, 55.1 KB, 2 pages
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If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email publications@ukhsa.gov.uk. Please tell us what format you need. It will help us if you say what assistive technology you use.
Details
The register is based at UK Health Security Agency (UKHSA) in London.
A multidisciplinary team, under the guidance of an expert steering group, undertakes the work of the register.
The register contains data for one of the largest cohorts of patients in Europe who have acquired their hepatitis C infections on a known date. Most cases are transfusion recipients who were traced during the national hepatitis C virus (HCV) lookback programme.
Systematic collection of clinical data using standardised report forms allows us to gather data consistently about every 3 to 5 years. This data, along with linked mortality and cancer data for cases and controls, allow us to establish the clinical course of hepatitis C virus (HCV) infection, and investigate risk factors for progressive disease.
Ongoing recruitment of paediatric and other HCV infections with known dates of acquisition enables us to inform and compare the clinical course of HCV infection in other important patient groups.
See HepatitisNational CRegister Nationalof Register:HCV: published papers on the UK Government Web Archive.
See HepatitisHCV C National Register: clinicians bulletin on the UK Government Web Archive.
See the previous documents for the Hepatitis C National Register on the UK Government Web Archive.
See UKHSA privacy notice.
Contact information
Blood Safety, Hepatitis, Sexually Transmitted Infections (STI) and HIV Division
UK Health Security Agency
61 Colindale Avenue
London
NW9 5EQ
Email the hepatitis team at: hepatitis@ukhsa.gov.uk
If you have any enquiries relating to the Infected Blood Compensation Scheme, please see who can join the scheme and how to apply.
The Infected Blood Compensation Authority (IBCA) is looking for input into how its service is designed and delivered. If you would like to provide input, please register your interest to help shape the IBCA service.
HCV National Register: registration form
PDF, 500 KB, 2 pages
This file may not be suitable for users of assistive technology.
Request an accessible format.
HCV National Register: follow-up form
PDF, 450 KB, 2 pages
This file may not be suitable for users of assistive technology.
Request an accessible format.
HCV National Register: patient information sheet
PDF, 53.6 KB, 2 pages
This file may not be suitable for users of assistive technology.
Request an accessible format.
HCV National Register: parent information sheet
PDF, 55.1 KB, 2 pages
This file may not be suitable for users of assistive technology.
Request an accessible format.
Details
The register is based at UK Health Security Agency (UKHSA) in London.
A multidisciplinary team, under the guidance of an expert steering group, undertakes the work of the register.
The register contains data for one of the largest cohorts of patients in Europe who have acquired their hepatitis C infections on a known date. Most cases are transfusion recipients who were traced during the national hepatitis C virus (HCV) lookback programme.
Systematic collection of clinical data using standardised report forms allows us to gather data consistently about every 3 to 5 years. This data, along with linked mortality and cancer data for cases and controls, allow us to establish the clinical course of hepatitis C virus (HCV) infection, and investigate risk factors for progressive disease.
Ongoing recruitment of paediatric and other HCV infections with known dates of acquisition enables us to inform and compare the clinical course of HCV infection in other important patient groups.
See HepatitisNational CRegister Nationalof Register:HCV: published papers on the UK Government Web Archive.
See HepatitisHCV C National Register: clinicians bulletin on the UK Government Web Archive.
See the previous documents for the Hepatitis C National Register on the UK Government Web Archive.
See UKHSA privacy notice.
Contact information
Blood Safety, Hepatitis, Sexually Transmitted Infections (STI) and HIV Division
UK Health Security Agency
61 Colindale Avenue
London
NW9 5EQ
Email the hepatitis team at: hepatitis@ukhsa.gov.uk
If you have any enquiries relating to the Infected Blood Compensation Scheme, please see who can join the scheme and how to apply.
The Infected Blood Compensation Authority (IBCA) is looking for input into how its service is designed and delivered. If you would like to provide input, please register your interest to help shape the IBCA service.
Updates to this page
Last updated 13
-
The HCV National Register privacy information has been updated and previous PHE documents archived.
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Update history
2026-06-13 10:03
The HCV National Register privacy information has been updated and previous PHE documents archived.
2025-01-06 16:08
Added contact information for Infected Blood Compensation Scheme and Infected Blood Compensation Authority in the Details section.
2024-05-22 10:15
Updated contact details.